The new TP
May 23, 2009 at 9:57 pm | In Bits & Pieces | Leave a CommentTP is now live at www.terriblepalsy.com.
Please come and visit us and don’t forget to replace your bookmark.
We’re moving but still the same
May 21, 2009 at 4:07 pm | In Bits & Pieces | 1 CommentQuick message from “The Sister”:
We’re moving Terrible Palsy to its own hosting and a redesign. Apologies for any navigational mis-haps in the meantime. If you notice anything that looks strange for now — hopefully it’ll be all fixed within a couple of hours. Please check back then.
The domain www.terriblepalsy.com remains the same. Please visit Moo and the family there soon.
Hurt
May 21, 2009 at 3:06 am | In My family | 2 CommentsI’m not exactly sure how Moo managed it but he hurt his leg when he ran into a bench in his power chair on Monday.
I received a phone call from the school a couple of hours after the incident because they were worried about him. 3 days later, I’m still worried about him as he isn’t sleeping very well. It’s the thing that if he isn’t sleeping well then neither am I. It’s presently 3am in the morning here.
The day after the incident and while Moo was watching morning television, I asked him whether his leg hurt. He answered “No”.
But before I could walk away, he clarified his answer.
“My leg does hurt Mummy,” he started. ”But not too much as I don’t want to go to the Doctors.”
Nothing like brutal honesty.
What??? (Edited)
May 1, 2009 at 2:02 pm | In Ranting | 4 CommentsIn the news:-
A PRIMARY school has infuriated parents and disability advocates by asking students to come to school dressed as a disabled person as part of a fundraiser.
In a newsletter sent home to parents on Wednesday, Ramco Primary School in South Australia advised it would hold a “disability day” and fundraiser on Friday, May 29, with prizes for the “best students dressed as a person with a disability”.
Read the rest here.
I’m not sure what is worst, the “bright” idea the school had, or some of the comments on the news article.
My favourite comment (definitely not) is this gem:-
“OH my god people. After reading all your comments I feel the need to say GROW UP. The school had great intentions, yes maybe they could have gone a different way about it but how dare they get burned at the stake for trying. I work with children with disabilities and with most of them their biggest disability is their parents!!!!!!!!!”
Wouldn’t you love to have this judgemental soul as your disability support worker? Makes you feel all warm and fuzzy (not) about your service provider.
Hidden
April 28, 2009 at 6:55 pm | In Bits & Pieces | 5 CommentsI wish I had my camera on me.
Moo was showing everyone exactly how naughty he can be. I had picked him up from school. It had already taken me 15 minutes to get from his classroom, to the pathway just down from the car. Everytime I turned around, Moo was going in the opposite direction laughing his head off. He thought it was hilarious. I just wanted to get in the car and go home.
I asked Master C to hop in the car in the hope that Moo would get over his game and follow. Instead, I turned around to see him driving in the opposite direction further and further away. Resigned, I just stood there and waited.
I watched as one of the cleaners walked past me. She was smiling. She had previously walked past the child in the powerchair who was giggling. Maybe she was thinking , “thank heavens my kids aren’t that naughty”. Who knows?
When I looked back at Moo, I couldn’t hold my laugh in. He was around 25 metres away from me. There were a couple of trees. The branches were sparse. They weren’t a bush. The trees still had a lot of growing to do. And Moo had pulled in behind one of the trees – hiding. Which would have been okay if he hadn’t have stuck out like a sore thumb. The tree would have been lucky if it had have covered one of his legs. Let alone the whole powerchair and him.
I wish I had my camera. To take a photo of him hiding like other kids do.
The kid is cute. Even when he is naughty.
I yelled out to Moo that I could still see him. He giggled and came over, finally finished with his game.
If you could only see . . .
April 15, 2009 at 4:43 pm | In Bits & Pieces | 6 CommentsWhat I see.
I’m not silly.
I realise that the person I see in Moo isn’t what everyone else sees.
He’s a kid. With that, comes the shyness. He doesn’t come right out and tell you what he thinks when he first meets you because he doesn’t trust you. In fact, you should consider yourself lucky if he does talk to you. It’s not the done thing.
Then there is the language barrier. He talks well but not to everyone’s understanding. Even I have trouble understanding him every now and again. It’s easy to understand the words you are expecting to hear. Problem is, Moo doesn’t speak the words you are expecting to hear.
And lastly, there is the preconceived idea of what he should be like. That preconceived idea is so totally off the radar as to what he is that people just can’t reconcile the belief to the actual kid before them. This actually ties into the point above. Your preconceived ideas tell you what you think he will be saying. Instead, he is telling you something completely different (and usually about Star Wars).
It makes me sad that not everyone sees him the way I do. But then again, how lucky am I? To know Moo is to love him. Absolutely. Without any doubt with every fibre of my being.
I hope that one day, you too can live in my world. And see what I see.
If you only need one more thing to re-inforce to you that first perceptions can be all wrong – please watch this – Susan Boyle.
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