The new TP

May 23, 2009 at 9:57 pm | In Bits & Pieces | Leave a Comment

TP is now live at www.terriblepalsy.com.  

Please come and visit us and don’t forget to replace your bookmark.

We’re moving but still the same

May 21, 2009 at 4:07 pm | In Bits & Pieces | 1 Comment

Quick message from “The Sister”:

We’re moving Terrible Palsy to its own hosting and a redesign.  Apologies for any navigational mis-haps in the meantime.  If  you notice anything that looks strange for now — hopefully it’ll be all fixed within a couple of hours.  Please check back then.

The domain www.terriblepalsy.com remains the same.  Please visit Moo and the family there soon.

Hurt

May 21, 2009 at 3:06 am | In My family | 2 Comments

I’m not exactly sure how Moo managed it but he hurt his leg when he ran into a bench in his power chair on Monday.

I received a phone call from the school a couple of hours after the incident because they were worried about him.  3 days later, I’m still worried about him as he isn’t sleeping very well.  It’s the thing that if he isn’t sleeping well then neither am I.  It’s presently 3am in the morning here.

The day after the incident and while Moo was watching morning television, I asked him whether his leg hurt.  He answered “No”.

But before I could walk away, he clarified his answer.

“My leg does hurt Mummy,” he started.  ”But not too much as I don’t want to go to the Doctors.”

Nothing like brutal honesty.

 

Moo smiling

Moo smiling

Funny

May 14, 2009 at 8:32 pm | In My family, My kids were sent here to embarrass me!, Parenting skills (or lack thereof) | 2 Comments

The baby formerly known as Sumo is getting more and more talkative.  He has recently taken to watching Scooby Doo.  I’m not sure why.  But he gets very excited when it is on.

As soon as he wakes up each morning he says, “Mummy watch scooby dooby doo?”  It is very cute.

I no longer really know what to call him.  I’ve always called him “baby”.  He is my baby.  But even he doesn’t like the title anymore.  He recently told me “No Mummy, not baby.  Mitchell.”

Told.

 

two out of three

two out of three

The other day, Moo was in his high chair playing when the baby came up to him and decided to have a chat.  Moo, not wanting to be rude, was a captive audience and nodded and encouraged the baby appropriately with his conversation.  Satisfied that he had got his point across, the baby left to go back to the playroom.

As Moo watched the baby walk away, he leaned over to Miss A and asked, “What did he say?”

 

Siblings turn

Siblings turn

Happiness

May 11, 2009 at 7:55 am | In My family | 12 Comments

The frustrating thing about the boys is that they don’t all smile during photos.  At least one of them has to be crying.

 

3 Boys

3 Boys

 

3 Boys

3 Boys

3 Boys

3 Boys

See what I mean?

Guess whose birthday it is today?

 

5 Candles

5 Candles

Happy Birthday Moo.

Winner

May 6, 2009 at 6:16 pm | In My family, My kids were sent here to embarrass me! | 4 Comments

Today was the cross country race for Moo and Master C.  

The bottom lips pouted this morning when we told the boys that we wouldn’t be able to make it.  This tugged at the heart strings of hubby (something about his Dad never watching him compete) and we moved mountains to make it just in time.  

First was Moo’s race.  Hubby proudly ran beside him dressed in his business suit.  No.  Not kidding.  He jogged with Moo in full suit.

Moo was even allowed to use top speed on his powerchair.

And he won.  He got the blue ribbon to prove it.

They did let Moo “run” a modified race as apparently the course took him through obstacles that they thought weren’t appropriate for the powerchair.  

Moo was very proud of himself.  You could tell by the way he showed me his ribbon.

Some of the parents thought that it wasn’t exactly fair.  And you know what, they are probably right.  But it was a lesson in humility.  Their kids may go on in the years to come and win the races, but for here and now, the kids learnt that there was more to the race then winning.  The kid who came second proudly showed me his red ribbon.  He didn’t care that he came second.  He just cared that he got a ribbon and that it was red (isn’t red the coolest colour).

Master C did better then last year.  You may remember that last year, Master C bolted for the first 100 metres and then collapsed to the ground barely walking the remainder.

This year, he did pace himself. He didn’t come first.  He didn’t come last.  

By the smile on Master C’s face, you could tell that there was far more important things then winning.

Like his Dad watching him race.  And in Master C’s mind, that equated to his own very special blue ribbon.

BADD run down

May 2, 2009 at 4:56 pm | In Blogroll | Leave a Comment

Blogging against Disablism Day is over.  If you didn’t catch the post click on the link below.

 

BADD 2009

BADD 2009

What??? (Edited)

May 1, 2009 at 2:02 pm | In Ranting | 4 Comments

In the news:-

A PRIMARY school has infuriated parents and disability advocates by asking students to come to school dressed as a disabled person as part of a fundraiser. 

In a newsletter sent home to parents on Wednesday, Ramco Primary School in South Australia advised it would hold a “disability day” and fundraiser on Friday, May 29, with prizes for the “best students dressed as a person with a disability”. 

Read the rest here.  

I’m not sure what is worst, the “bright” idea the school had, or some of the comments on the news article.

My favourite comment (definitely not) is this gem:-

“OH my god people. After reading all your comments I feel the need to say GROW UP. The school had great intentions, yes maybe they could have gone a different way about it but how dare they get burned at the stake for trying. I work with children with disabilities and with most of them their biggest disability is their parents!!!!!!!!!”

Wouldn’t you love to have this judgemental soul as your disability support worker?   Makes you feel all warm and fuzzy (not) about your service provider.

Hidden

April 28, 2009 at 6:55 pm | In Bits & Pieces | 5 Comments

I wish I had my camera on me.

Moo was showing everyone exactly how naughty he can be.  I had picked him up from school.  It had already taken me 15 minutes to get from his classroom, to the pathway just down from the car.  Everytime I turned around, Moo was going in the opposite direction laughing his head off.  He thought it was hilarious.  I just wanted to get in the car and go home.

I asked Master C to hop in the car in the hope that Moo would get over his game and follow.  Instead, I turned around to see him driving in the opposite direction further and further away.  Resigned, I just stood there and waited.

I watched as one of the cleaners walked past me.  She was smiling.  She had previously walked past the child in the powerchair who was giggling.  Maybe she was thinking , “thank heavens my kids aren’t that naughty”.  Who knows?

When I looked back at Moo, I couldn’t hold my laugh in.  He was around 25 metres away from me.  There were a couple of trees.  The branches were sparse.  They weren’t a bush.  The trees still had a lot of growing to do.  And Moo had pulled in behind one of the trees – hiding.  Which would have been okay if he hadn’t have stuck out like a sore thumb.    The tree would have been lucky if it had have covered one of his legs.  Let alone the whole powerchair and him.  

I wish I had my camera.  To take a photo of him hiding like other kids do.  

The kid is cute.  Even when he is naughty.

I yelled out to Moo that I could still see him.  He giggled and came over, finally finished with his game.

If you could only see . . .

April 15, 2009 at 4:43 pm | In Bits & Pieces | 6 Comments

What I see.

I’m not silly.  

I realise that the person I see in Moo isn’t what everyone else sees. 

He’s a kid.  With that, comes the shyness.  He doesn’t come right out and tell you what he thinks when he first meets you because he doesn’t trust you.  In fact, you should consider yourself lucky if he does talk to you.  It’s not the done thing.  

Then there is the language barrier.  He talks well but not to everyone’s understanding.  Even I have trouble understanding him every now and again.  It’s easy to understand the words you are expecting to hear.  Problem is, Moo doesn’t speak the words you are expecting to hear.

And lastly, there is the preconceived idea of what he should be like.  That preconceived idea is so totally off the radar as to what he is that people just can’t reconcile the belief to the actual kid before them.  This actually ties into the point above.  Your preconceived ideas tell you what you think he will be saying.  Instead, he is telling you something completely different (and usually about Star Wars).  

It makes me sad that not everyone sees him the way I do.  But then again, how lucky am I?  To know Moo is to love him.  Absolutely.  Without any doubt with every fibre of my being.

I hope that one day, you too can live in my world.  And see what I see.

If you only need one more thing to re-inforce to you that first perceptions can be all wrong – please watch this – Susan Boyle.

Next Page »

Blog at WordPress.com. | Theme: Pool by Borja Fernandez.
Entries and comments feeds.