The Good, The BADD and the . . .
May 7, 2008 at 5:05 pm | In Blogroll | 3 CommentsTags: BADD, change, disability
. . . Missing.
Sorry for not posting lately. I’ve been reading my way through this year’s BADD.
So many great posts. Please go and have a read.
I would be remiss, not to mention the posts from this blog’s sister blog. Ekie and ActiveVoice wrote fantastic submissions.
Attila, like always delivers a serious message in a humorous way.
But amongst all the fantastic posts (too many to mention each and every one here), is a contribution from Lisa at Twinkle Little Star. It was the post that made me stop and think. Here’s a quote:-
Most disabled kids are born into a family who would not voluntarily have chosen to have a disabled child. They may have no connections with disability culture and may, in fact, have never even met another person with the child’s disability or any disability for that matter. They may harbor deep misconceptions and prejudices about people with disabilities. And they grieve the loss of the nondisabled child they expected. Although many parents do a commendable job getting schooled about disability really quickly and often have wonderous transformations in thought and even in cultural identity because of it, this may take years. And for some families, the fear and hatred of the sick and disabled never truly goes away. They may come to love their child, but never are able to love that part of them which is disabled.
Go, read more.
Be back soon.
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About Terrible Palsy
This is the blog about Moo and his loving family. Born 13 weeks too early, Moo has spastic diplegia cerebral palsy but lives a wonderful life...
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I disagree with that quote about a million percent. I am disabled and I know that my parents gave me everything they had because I was their child and they loved me and wanted me to live and be happy and healthy. The idea that I was not the able bodied child that they’d wanted didn’t enter their minds because they had no time to think about that. And contrary to the quote, they do not harbor hatred and fear of the disabled, but are in fact advocates for the disabled. They have to be.
Comment by treadmarkz — May 8, 2008 #
Do you think that is true…that we never love the disabled part? I don’t think I separate Grace in pieces like that…at least I hope not. I love every single bit of her.
Comment by Jacolyn — May 9, 2008 #
I am a first time reader. It hurts too much to dig too deep. I love your name though! Had a good laugh. Terrible palsy, now why didn’t I think of that?? Anyhow, I thought the quote was pretty accurate of me nearly two years ago. Truth is, you can’t love the disabled part – it is just too darn hard. You do love him as a whole though, like you would still love your child even if he scores a D for maths?? I love my son, although he can do so little. What I am greatful for, is that he can do the things that are important to me as a mother. He can smile, laugh and love.
Comment by Carina — June 3, 2008 #